My First Blog Post

Posted byMichaela L-DPosted inUncategorized

Welcome to Rare and Relatable

Keep your face to the sunshine and you cannot see a shadow.

– Helen Keller

Welcome to my new blog Rare and Relatable.

This is my story, written from my perspective, about raising my three children – one of which has an extremely rare genetic disorder.

My aim for this blog is to celebrate differences and educate others about disability. To show how rare can also be relatable. It is also for other parents of disabled children to – hopefully – feel seen. You are not alone.

Before I had my daughter, I knew very little about physical and intellectual disability. I had so many preconceptions and misconceptions about the world of disability. I was scared to even use the term ‘disabled’.

Six years on, I am still on a huge learning journey – specifically with being the parent to a child with a severe disability, but I’d like to share my journey with you. And maybe I can change some of your preconceptions and misconceptions. Perhaps I can stop you from being as scared as I was when I first found out my daughter was disabled. I want to show you that although having a child with complex needs can be incredibly challenging at times, it is also so incredibly beautiful. That having a daughter like ours is a blessing. I hope by showing you our normal, you can grow your own understanding and pass on to your own children how important it is to be inclusive and kind to all members of society and to never see anyone as inferior or not important. That everyone has their place in this world.

I want you to see my daughter how I see her – a gorgeous and wonderful miracle who will change the world.

I hope you enjoy learning about our girl, our family and our fight for inclusion and understanding.

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Published by Michaela L-D

Hello! I am Michaela, I’m a wife and mother of three. My middle child, my lovely Louisa, has a very rare genetic condition. Since I was blessed with my girl, it has been an emotional journey over the years navigating the complexity - but also the beauty - of life with a severely disabled child. However, through all the worry, heartache and trauma, I feel so lucky to be Louisa's mum and to be able to experience life through a different perspective. Louisa brings more joy into my world than I ever could have wished or imagined. This is my story, in my words, about raising my beautiful rare girl and learning as I go.

14 thoughts on “My First Blog Post”

  1. You are amazing! You have a very special family.

    Loved reading your blog, can’t wait to hear more. Look forward to your next post. Well done gorgeous girl xxxxx

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  2. Thank you for sharing your journey with us. I am sure that many people will have comfort in reading this. God bless you! you are brave !
    You have a beautiful family ❤
    Love you all
    Aliza

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  5. You are all so special and I look forward to reading all your blog posts. The world deserves to know how amazing you all and Louisa are xxx

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