Category Archives: Uncategorized

On Thursday I took this photo of myself. And as much as I’ve never been one to want to moan or expose the rubbish parts of my life on social media (or – let’s get really honest here- show an ugly photo of myself 😉) I promised when I started writing this blog, that IContinue reading “Tears”

Dear Fred, I just wanted to write to you to tell you how much I love you and to tell you how proud I am of you. I want you to know how smart, brave, funny and beautiful you are. I want you to know that you are important, that you are loved and thatContinue reading “Dear Fred”

“So what is actually wrong with Louisa?” Let’s be clear right from the start, just in case there is confusion….. there is nothing ‘wrong’ with our girl. She is wonderful and funny and everything she is meant to be. She brings more joy and laughter into our lives than we’ve ever known. But, I oftenContinue reading “Diagnosis”

When I was teaching – before I even had Fred – I remember a teaching assistant telling me a poem about a parent’s view of having a child with a disability. I can remember thinking it sounded beautiful. This memory sticks in my head. And to be honest here, I always think back and considerContinue reading “Holland”

Keep your face to the sunshine and you cannot see a shadow. – Helen Keller Welcome to my new blog Rare and Relatable. This is my story, written from my perspective, about raising my three children – one of which has an extremely rare genetic disorder. My aim for this blog is to celebrate differencesContinue reading “My First Blog Post”

This is my first post and if I’m truthful, I’m terrified! I’m terrified that people will laugh or think I’m super cringe. I have this horrible image of people saying, “Have you read Michaela’s blog? It was so embarrassing!”. Now, I don’t for one moment honestly think that by me writing a few words onContinue reading “Why blog?”