Author Archives: Michaela L-D

I saw them hanging on the rack in front of me. Peppa Pig pyjamas. Pink and sparkly. I wanted to get them for Louisa. She needed new pyjamas and she loves Peppa Pig. I looked down for her size carefully, searching through the rows and rows of pyjamas. I couldn’t see her size. It wasn’tContinue reading “Peppa”

It all started with milk. Four pints of it spilled on the kitchen floor – to be exact. You know that saying, ‘Don’t cry over spilt milk’? Well, I don’t think that counts for four pints. Because, for me, there felt like there were a lot of reasons for crying. And cry I did. RepeatedlyContinue reading “Milk”

Last week I was organising my bedside drawers when I came across this note. It’s a couple of years old. Maybe three. Fred had written it to me and slipped it under my bedroom door (with a sensory book to ‘fleel’) when I was having a really tough time. I remember it like it wasContinue reading “Fleel Good”

For better, for worse,for richer, for poorer,in sickness and in health,to love and to cherish,till death us do part. Nearly ten years ago my husband David and I said these vows to each other. We were young and naive but so in love. We didn’t have a home of our own or a plan. We’dContinue reading “Marriage – Part 1 – The Early Days”

I’ve been wanting to change my blog name for a while. I started this blog in January 2020. We’d moved back to the UK from Canada where Louisa had been born three years previously. I wrote a few posts just describing certain feelings I’d felt over the years. My plan was to upload new blogsContinue reading “Rare and Relatable”

He said it. We were laying on the floor, rolling around being silly together. My little one year old boy. My healing baby. He was giggling. I was giggling, He gave me a cuddle and then….. He said it. “Luff Yoo.” The words shot through me. My body absorbed each syllable. My soul instantly warmed.Continue reading “Luff Yoooo”

Louisa lost her first tooth. My beautiful little girl lost her first little baby tooth. And I cried. I cried and cried and cried. In that moment I didn’t know why the tears streamed heavily down my cheeks as I cuddled her tightly, congratulating a new milestone. A milestone like so many other six yearContinue reading “Tooth Fairy”

Six. Six years of loving you. Six years of feeling so proud. Six years of finding joy. Six years of learning. Six years of realising what is truly important in life. Six years of laughter. Six years of happy and sad tears. Six years of holding you tight and never wanting to let go. SixContinue reading “Six”

“Sometimes I wonder what Louisa would be like if she wasn’t disabled.” I looked at him, my seven year old son, as the words left his mouth. He was sitting at our small kitchen table doing his homework whilst I was unstacking the dishwasher. His words hung in the air and drowned out the dinContinue reading ““If she wasn’t disabled…..””

Why? It’s just one word, but it asks a lot. Why? I think that probably everyone who is reading this blog has had a moment in their lives where they have felt something is unfair. Where they have asked ‘why me?’, ‘why us?’….. just….. ‘why?’ And although I know how lucky we are and howContinue reading “Why?”

I haven’t uploaded a blog post in a while. That doesn’t mean I haven’t had a lot to say, there are SO many things I could have written, so many things I’ve wanted to shout from the roof tops about – but none of it was ‘inspirational’ and none of it had a ‘happy ending’.Continue reading “When it’s not going well”

There is a lot of grief that lives alongside being a special needs parent. Grief is something I am personally working my way through and something that I most likely will talk about in more detail another time. It is a very emotive and complex feeling that I live with. As I’ve muddled through theContinue reading “Triggers”

I’ve wondered for a long time how much I should share about our life with Louisa. It’s something that my conscience battles with. In general (as many of you know!) I’m a classic over sharer in real life (especially when there is wine involved!) but the internet is a different thing. I’ve always liked postingContinue reading “Share? Don’t share? Over share?”

This is a letter from the Michaela I am today, to the Michaela who was hurting three years ago….. Dear Michaela, I’m the future you, talking to you from about three years from where you are now. I know you are having a really hard time and I wish I could give you a cuddleContinue reading “Dear Michaela”

It has been a long time since I have published a blog post. That’s because, although a few months ago my head was buzzing with all the different things I wanted to address with regards to disability and all the different things that were going on in our lives with Louisa, when the Coronavirus situationContinue reading “Coronavirus”